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The Lives They Left Behind: Suitcases from a State Hospital Attic, by Darby Penney

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Review

“The Lives They Left Behind is a deeply moving testament to the human side of mental illness, and of the narrow margin which so often separates the sane from the mad. It is a remarkable portrait, too, of the life of a psychiatric asylum—the sort of community in which, for better and for worse, hundreds of thousands of people lived out their lives. Darby Penney and Peter Stastny’s careful historical (almost archaeological) and biographical reconstructions give us unique insight into these lives which would otherwise be lost and, indeed, unimaginable to the rest of us.” —Oliver Sacks“Fascinating. . . . The haunting thing about the suitcase owners is that it’s so easy to identify with them.” —Newsweek“In their poignant detail the items helped rescue these individuals from the dark sprawl of anonymity.” —New York Times“[The authors] spent 10 years piecing together a handful of poignant biographical narratives, tracking down medical records, talking to former staff and using artifacts from the suitcases as clues to the lives these patients lived before they were nightmarishly stripped of their identities.” —Newsday“This book should be required reading for anyone who struggles with the treatment of mental illness in community settings.” —New England Journal of Medicine“A powerful indictment of healthcare for the mentally ill.” —Publishers Weekly“No reader will walk away untouched by these compelling portraits.” —Ronald Bassman, Ph.D., author of A Fight to Be: A Psychologist's Experience from Both Sides of the Locked Door“An important and profoundly moving story. . . . The exquisite details we learn about the patients’ lives—the color of lace on a dress, a plea to a bishop, the photo of a wife who died—convey the particulars of their humanness, their strengths, and their tragedies, and a chapter revealing sad and frightening parallels between long-ago and current treatment of many people called mentally ill should shock us all into action.” —Paula J. Caplan, Ph.D., author of They Say You’re Crazy: How the World’s Most Powerful Psychiatrists Decide Who’s Normal“Darby Penney and Peter Stastny have . . . performed an important service, reclaiming these individuals from the nameless, faceless fate of being only ‘mental patients.’” —Judi Chamberlin, author of On Our Own: Patient Controlled Alternatives to the Mental Health System“As we have yet to provide a full measure of support and treatment to men and women diagnosed with mental illnesses, The Lives They Left Behind offers a sobering reminder of past tragic errors, lest, in our search for new therapies, we lose sight of what should matter most: our sense of common humanity.” —Drew Days III, Alfred M. Rankin Professor of Law at Yale Law School, former Solicitor General in the Clinton Administration and Assistant Attorney General for Civil Rights in the Carter Administration“In unpacking the prior lives stored in these suitcases, Darby Penney and Peter Stastny turn remembrance into an act of alchemy.” —Kim Hopper, Ph. D., author of Reckoning with Homelessness“A unique and mesmerizing evocation of lives erased . . . at once unnerving, heartbreaking, and a bitter testament to an era in psychiatric history whose legacy is all too present today.” —Gail A. Hornstein, Ph.D., author of To Redeem One Person Is to Redeem the World: The Life of Frieda Fromm-Reichmann“The Lives They Left Behind is a tour de force, a must-read for anyone concerned with social justice, human rights and historical reclamation. Darby Penney and Peter Stastny brilliantly rescue ten people who spent time at Willard State Hospital from certain historical anonymity and silence by giving them voice to speak for themselves. Their riveting accounts invite us to explore the turmoil and strengths of their inner terrain while mourning the erosion of hope after years of captivity and inhumane treatment in the name ‘help’ and under the guise of ‘best interest.’ The Lives They Left Behind is more than a testament to the past, it is a wake up call to our collective conscience, to uphold the spirit and dignity of all human beings.” —Laura Prescott, President and Founder, Sister Witness International Inc.“A stunning achievement.” —Robert Whitaker, author of Mad in America (from the Foreword)“The Lives They Left Behind is a deeply moving testament to the human side of mental illness, and of the narrow margin which so often separates the sane from the mad. It is a remarkable portrait, too, of the life of a psychiatric asylum―the sort of community in which, for better and for worse, hundreds of thousands of people lived out their lives. Darby Penney and Peter Stastny’s careful historical (almost archaeological) and biographical reconstructions give us unique insight into these lives which would otherwise be lost and, indeed, unimaginable to the rest of us.” ―Oliver Sacks“Fascinating. . . . The haunting thing about the suitcase owners is that it’s so easy to identify with them.” ―Newsweek“In their poignant detail the items helped rescue these individuals from the dark sprawl of anonymity.” ―New York Times“[The authors] spent 10 years piecing together a handful of poignant biographical narratives, tracking down medical records, talking to former staff and using artifacts from the suitcases as clues to the lives these patients lived before they were nightmarishly stripped of their identities.” ―Newsday“This book should be required reading for anyone who struggles with the treatment of mental illness in community settings.” ―New England Journal of Medicine“A powerful indictment of healthcare for the mentally ill.” ―Publishers Weekly“No reader will walk away untouched by these compelling portraits.” ―Ronald Bassman, Ph.D., author of A Fight to Be: A Psychologist's Experience from Both Sides of the Locked Door“An important and profoundly moving story. . . . The exquisite details we learn about the patients’ lives―the color of lace on a dress, a plea to a bishop, the photo of a wife who died―convey the particulars of their humanness, their strengths, and their tragedies, and a chapter revealing sad and frightening parallels between long-ago and current treatment of many people called mentally ill should shock us all into action.” ―Paula J. Caplan, Ph.D., author of They Say You’re Crazy: How the World’s Most Powerful Psychiatrists Decide Who’s Normal“Darby Penney and Peter Stastny have . . . performed an important service, reclaiming these individuals from the nameless, faceless fate of being only ‘mental patients.’” ―Judi Chamberlin, author of On Our Own: Patient Controlled Alternatives to the Mental Health System“As we have yet to provide a full measure of support and treatment to men and women diagnosed with mental illnesses, The Lives They Left Behind offers a sobering reminder of past tragic errors, lest, in our search for new therapies, we lose sight of what should matter most: our sense of common humanity.” ―Drew Days III, Alfred M. Rankin Professor of Law at Yale Law School, former Solicitor General in the Clinton Administration and Assistant Attorney General for Civil Rights in the Carter Administration“In unpacking the prior lives stored in these suitcases, Darby Penney and Peter Stastny turn remembrance into an act of alchemy.” ―Kim Hopper, Ph. D., author of Reckoning with Homelessness“A unique and mesmerizing evocation of lives erased . . . at once unnerving, heartbreaking, and a bitter testament to an era in psychiatric history whose legacy is all too present today.” ―Gail A. Hornstein, Ph.D., author of To Redeem One Person Is to Redeem the World: The Life of Frieda Fromm-Reichmann“The Lives They Left Behind is a tour de force, a must-read for anyone concerned with social justice, human rights and historical reclamation. Darby Penney and Peter Stastny brilliantly rescue ten people who spent time at Willard State Hospital from certain historical anonymity and silence by giving them voice to speak for themselves. Their riveting accounts invite us to explore the turmoil and strengths of their inner terrain while mourning the erosion of hope after years of captivity and inhumane treatment in the name ‘help’ and under the guise of ‘best interest.’ The Lives They Left Behind is more than a testament to the past, it is a wake up call to our collective conscience, to uphold the spirit and dignity of all human beings.” ―Laura Prescott, President and Founder, Sister Witness International Inc.“A stunning achievement.” ―Robert Whitaker, author of Mad in America (from the Foreword)

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About the Author

Coauthor of The Lives They Left Behind: Suitcases from a State Hospital Attic, Darby Penney is a national leader in the human rights movement for people with psychiatric disabilities and a former state mental health official. An experienced trainer and qualitative researcher with a background in state mental health planning, Darby has written, presented and consulted nationally and internationally on a wide range of issues concerning empowerment, inclusion, rights, and other topics. She is the President and Executive Director of the Community Consortium.Coauthor of The Lives They Left Behind: Suitcases from a State Hospital Attic, Peter Stastny is a psychiatrist and documentary filmmaker who has advocated for radical changes in the mental health system and worked on several transformative demonstration projects in New York and around the world. He has collaborated with Darby Penney and other experts-by-experience on spreading self-help and empowerment programs, spearheaded the employment of ex-patients in alternative services, and is a founder of the International Network for Alternatives and Recovery (INTAR). Peter was on the faculty of the Albert Einstein College of Medicine and Columbia University and continues to teach and work in New York City.

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Product details

Paperback: 208 pages

Publisher: Bellevue Literary Press; Reprint edition (January 1, 2009)

Language: English

ISBN-10: 1934137146

ISBN-13: 978-1934137147

Product Dimensions:

6 x 0.6 x 9 inches

Shipping Weight: 11.2 ounces (View shipping rates and policies)

Average Customer Review:

4.2 out of 5 stars

317 customer reviews

Amazon Best Sellers Rank:

#48,080 in Books (See Top 100 in Books)

I have the Audible version and regret buying it. The content is fine, but the voiceover artist they used is AWFUL. His delivery is very flat, stilted, and boring. It's hard to believe they hired him. The only other time I've heard a voiceover this bad was when I listened to a book that was voiced by the author who very clearly was not a professional voiceover artist. His voice is so deep that it almost gives me unpleasant shivers down my back. There may be a place for that in the voiceover business, but this book isn't it. He also pronounces some words very oddly and his entire delivery is just unnatural. It's so distracting that it's hard to pay attention to the book itself. Really too bad.

A state hospital in upstate New York closes and hundreds of suitcases are found in the attic. After everything is cataloged and researched, the authors choose ten lives to focus on. I found it amazing that some people lived in mental hospitals for forty or fifty years. One woman was there for 75 years.

I have experience as did my father of being institutionalized. The horrors of that experience heal somewhat, but never go away. I am blessed that my two hospitalization a (so called) ungodly conditions with people needing love and positive access to be creative i.e. A patient centered wholistic approach to care" did not happen. Rather smoke filled day rooms with people over-medicated on psychotropics, ECT with NO anesthesia, lining up for showers wrapped in a towel with one bar of soap, sleeping in a large room with many beds reeking of bleach and people crying, screaming with terror.I am so appreciative of the three researchers/authors. This book is invaluable. Tragically, all of the wonderful people whose lives were traced will never know the there will be those who embrace their humanity and have all off their sufferings told post-humously. I hope with all my heart that many people will read these life stories traced with compassion and backed with impeccable research will become a historical commentary on how much human destruction has occurred for too long and though shifting and very gradually improving there are countless "suit cases in the attic". The lives of human beings who endured so much torment and suffering will never be known to us. It is way beyond an acceptable time to make these facts known to the public. The time for learning our history and teaching it and standing bold and tall to end prejudice and make huge changes is NOW.

Difficult to conceive how very easy it was in the early 20th century to commit people to life-long stays in institutions. If yo were perceived to be a problem, your essential rights as an American citizen and a human being were stripped away, despite any very lucid protestations of the individual being institutionalized. How mental illness was dealt with is examined in a few case, or perhaps "suitcase" studies in this book. Traumatized lost souls whose conditions often worsened after being committed. A very sad commentary on the mindset of early 20th century "treatment" of mental illness. Such incredible sadness foisted upon those who no longer "fit" into the expectations of society.A very good read!

The stories were amazing and heartbreaking. I had two family members in asylums during the same time period but because of the stigma it was never discussed. I now have a better understanding of what they endured and wish I had had the opportunity to meet them.

I was doing research for my book club on mental institutions for the book "What she left behind". The book about the suitcases was the true story of the Willard Institution in New York state and the terrible conditions the patients lived under. Willard has since closed and these suitcases (over 400 of them) were found stored for many years and apparently never opened by their owners. The book covers 10 of the owners of the suitcases and how they ended up at Willards where most of them died. It is an important book on the importance of better treatment for the mentally ill.

A sad story of people diagnosed as paranoid schizophrenic but in fact many may not have been affected. It is extremely unfortunate that these patients were treated in an inhumane manner, yet our medical history going back 50 or more years is fraught with clinical misdiagnosis from medical professionals who were not able to listen to patient needs and use common sense to the reports.

The overriding theme is that "in those days" it didn't take much to be admitted to such places, and it was almost always a death sentence, long and slow and miserable. It seems crowd control was the only goal of the psychiatric profession, and cheap labor the goal of the institutions. The stories are heartbreaking, but such stories are still being lived out today, with pharmaceutical death sentences and never-ending psychoanalysis. The results, and the stigma, are still the same.

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